I think it is definately helping to remove the Allpurinol. Bruce looked much better this weekend, not nearly as white and pastey looking. He seem to feel better also. He is still tired and out of breath but i think he looks better than he has in several months. I sure hope it stays this way.
We went out to dinner Saturday night something he has not felt up to doing in several weeks. On Sunday we went to Walmart and Costco and he made it thru both of them.
He has a ultrasound tomorrow heres hoping all goes good. His blood test should be back by Wednesday I sure hope his liver enzymes are on the way down.
Now we have to change insurance companies to his new employers coverage. Not sure how much the co-pay will be but I am hoping it is at least comparable to what we pay now.
If all is good he can start the other antiviral. One way or the other we should find out what is causing the problem this week.
Showing posts with label hepatitis C. Show all posts
Showing posts with label hepatitis C. Show all posts
Monday, November 9, 2009
Wednesday, November 4, 2009
Week 19 & 20
Bruce weekends really have not changed, he just feels like crap and is tired and he needs to rest with naps. After taking the shots Friday night Saturday and Sunday are just plain ole TOUGH.
I have been so frustrated with his liver enzymes be high that I stayed up late last weekend to google everything that I could think of to see if I could figure out what might be causing this. I started investigating all the drugs he is on and low and behold I stumbled on to something on drugss.com. The medcation he is on for is gout indicated that it could cause elevated liver tests, so I asked his doctor this week to google it and it looks very likely that this may be the problwm . He is off that drug for a week then a blood test to see if his levels are lower. The doctor also has ordered a ultrasound to look at his liver see if anything looks abnormal. I sure hope we found the answer.
It now looks like he will need to be on treatment for 72 instead of 52 weeks, which really sucks but were looking for a cure, so we will hold it together and make it through this.
Thursdays and Fridays before shots are becomming my favorite days of the week, he feels better and that make me happy.
I have been so frustrated with his liver enzymes be high that I stayed up late last weekend to google everything that I could think of to see if I could figure out what might be causing this. I started investigating all the drugs he is on and low and behold I stumbled on to something on drugss.com. The medcation he is on for is gout indicated that it could cause elevated liver tests, so I asked his doctor this week to google it and it looks very likely that this may be the problwm . He is off that drug for a week then a blood test to see if his levels are lower. The doctor also has ordered a ultrasound to look at his liver see if anything looks abnormal. I sure hope we found the answer.
It now looks like he will need to be on treatment for 72 instead of 52 weeks, which really sucks but were looking for a cure, so we will hold it together and make it through this.
Thursdays and Fridays before shots are becomming my favorite days of the week, he feels better and that make me happy.
Monday, October 26, 2009
Week 17
Tuesday, October 20, 2009
week 17
We decided to drive over to coast this weekend for a little get away. Bruce had a very restless Friday night after his shot so neither one of us slept well. Saturday it rained, well actually poured most the day. We went downtown Brookings for a few but Bruce was tired and looked pale so we went back to the condo so he could get a nap.
I honestly think he should try some medical marijuana but were both so damn old and straight neither of us has any idea were to get any. Can't imagine going to one of those quack doctors in the Nickle newspaper. Plus I am pretty sure we would get busted since I have no idea how much an ounce is unless it is in a measuring cup or a shot glass. Still crack my self up when I ordered a kilo of turkey at the deli in Mexico, I thought it was something like a pound, nope that would be 2.2 pounds.
We agree we loved staying in Suzie's condo. It is right on the river overlooking the Jetty and opening to the ocean. It is so much more comfortable to have a whole house to come home to and stretch out.
Later we took a drive down to Crescent city casino for a hour or so. Went to dinner at O'hollerans and headed to casino at Smith River. Bruce won a few bucks I ended up even, so all and all a win.
Saturday night was another sleepless night, not sure why but we both tossed all night. I finally got some sleep on the drive home.
I have a busy week ahead, two after work meetings, a yearly board of directors update along with the normal day to day excitement.
Bruce has a doctor appointment next week so he will need to get his blood work done again. Here's hoping his liver enzymes are down.
week 17
We decided to drive over to coast this weekend for a little get away. Bruce had a very restless Friday night after his shot so neither one of us slept well. Saturday it rained, well actually poured most the day. We went downtown Brookings for a few but Bruce was tired and looked pale so we went back to the condo so he could get a nap.
I honestly think he should try some medical marijuana but were both so damn old and straight neither of us has any idea were to get any. Can't imagine going to one of those quack doctors in the Nickle newspaper. Plus I am pretty sure we would get busted since I have no idea how much an ounce is unless it is in a measuring cup or a shot glass. Still crack my self up when I ordered a kilo of turkey at the deli in Mexico, I thought it was something like a pound, nope that would be 2.2 pounds.
We agree we loved staying in Suzie's condo. It is right on the river overlooking the Jetty and opening to the ocean. It is so much more comfortable to have a whole house to come home to and stretch out.
Later we took a drive down to Crescent city casino for a hour or so. Went to dinner at O'hollerans and headed to casino at Smith River. Bruce won a few bucks I ended up even, so all and all a win.
Saturday night was another sleepless night, not sure why but we both tossed all night. I finally got some sleep on the drive home.
I have a busy week ahead, two after work meetings, a yearly board of directors update along with the normal day to day excitement.
Bruce has a doctor appointment next week so he will need to get his blood work done again. Here's hoping his liver enzymes are down.
Week 16
Tuesday, October 13, 2009
week #16
This weekend was Kylei's birthday. Bruce took his shot and went to bed fairly early friday night.
I got up Saturday morning to go watch Miss Bella at dance class, she is so cute. When I got home he was up looking pale and determined to cover the pool for the winter. I made him some breakfast and made him take a break. Bruce still has a hacking cough and were waiting on the new prescription to arrive, so tomorrow he will need to call Debzilla and get her to fax it in again. He is suppose to get another blood test but he balks at going because the co-pay is 45.00 and he dosent see the need for more than 1 a month. I kind of agree or I would force him to go get it done. He gets one a month and getting them more frequently wont change his liver enzymes.
This was just not our day, I had promised Kylei i would make dinner for family and friends and keep Glowie for the night so she could go out. When I was opening a can of enchilada sauce I somehow managed to dump almost a full 32 oz can of RED enchilada sauce all over me Bella and the kitchen, all the while poor Glowie as crying for me to come get her in the livingroom. I called Bruce to come help - he thought I was bleeding. I really should have taken pictures, I am sure I would have won funniest home videos if it would have been on tape. Before it was all over I had ripped of my soaked shirt and am topless cleaning up the mess. Bella Glowie and I all had to jump in the bath to get cleaned up.Then low and behold of all days for the sewer to back up today was the day. Bruce made sure our part of the pipes were clean and called the sewer company to come out.. Four or five frustrating calls later we finally got a rotor rooter guy to come clean the line in the neighbors yard. By the time dinner was done we were both beat.
Glowie spent the night but did not sleep well so I was up most the night.We are considering a weekend away with just Bruce and I, have to see how that pans out later this week.
week #16
This weekend was Kylei's birthday. Bruce took his shot and went to bed fairly early friday night.
I got up Saturday morning to go watch Miss Bella at dance class, she is so cute. When I got home he was up looking pale and determined to cover the pool for the winter. I made him some breakfast and made him take a break. Bruce still has a hacking cough and were waiting on the new prescription to arrive, so tomorrow he will need to call Debzilla and get her to fax it in again. He is suppose to get another blood test but he balks at going because the co-pay is 45.00 and he dosent see the need for more than 1 a month. I kind of agree or I would force him to go get it done. He gets one a month and getting them more frequently wont change his liver enzymes.
This was just not our day, I had promised Kylei i would make dinner for family and friends and keep Glowie for the night so she could go out. When I was opening a can of enchilada sauce I somehow managed to dump almost a full 32 oz can of RED enchilada sauce all over me Bella and the kitchen, all the while poor Glowie as crying for me to come get her in the livingroom. I called Bruce to come help - he thought I was bleeding. I really should have taken pictures, I am sure I would have won funniest home videos if it would have been on tape. Before it was all over I had ripped of my soaked shirt and am topless cleaning up the mess. Bella Glowie and I all had to jump in the bath to get cleaned up.Then low and behold of all days for the sewer to back up today was the day. Bruce made sure our part of the pipes were clean and called the sewer company to come out.. Four or five frustrating calls later we finally got a rotor rooter guy to come clean the line in the neighbors yard. By the time dinner was done we were both beat.
Glowie spent the night but did not sleep well so I was up most the night.We are considering a weekend away with just Bruce and I, have to see how that pans out later this week.
Week 15
Monday, October 5, 2009
Week #15
Wow - another week down. Bruce took his shot Friday night and slept most the day Saturday. The treatment is still pretty rough on him, he is pale, weak, and nauceous most of the day after his shot. I wish there was something I could do to make it easier on him. Might try making some carrot orange and ginger juice next week see if it will help the nausea.
I sent in the order for the new medication but it has not arrived yet. Bruce has to get a blood test next week, heres praying his liver enzymes are coming down.
Kylei, Bella, Glowie, and I went shopping. Glowie just melts in my arms, something about holding her just puts her to sleep, she is so sweet and cuddley. Bella was a champ shopping and earned a toy for being good.
Kylei's birthday is next week so we will have birthday dinner next Saturday for her at the house. Bella wants to help me cook. Sunday we did not do much took it easy, it was a rainy cold weekend so good weekend to just sleep away.
Kylei and Dylan have decided they want to get married next July on Isla, I have my fingers crossed that Bruce will get a dual celebration giving his daughter away and finishing his treatments. We have lots to get done so Kylei needs to choose her date and we need to start making plans.
Week #15
Wow - another week down. Bruce took his shot Friday night and slept most the day Saturday. The treatment is still pretty rough on him, he is pale, weak, and nauceous most of the day after his shot. I wish there was something I could do to make it easier on him. Might try making some carrot orange and ginger juice next week see if it will help the nausea.
I sent in the order for the new medication but it has not arrived yet. Bruce has to get a blood test next week, heres praying his liver enzymes are coming down.
Kylei, Bella, Glowie, and I went shopping. Glowie just melts in my arms, something about holding her just puts her to sleep, she is so sweet and cuddley. Bella was a champ shopping and earned a toy for being good.
Kylei's birthday is next week so we will have birthday dinner next Saturday for her at the house. Bella wants to help me cook. Sunday we did not do much took it easy, it was a rainy cold weekend so good weekend to just sleep away.
Kylei and Dylan have decided they want to get married next July on Isla, I have my fingers crossed that Bruce will get a dual celebration giving his daughter away and finishing his treatments. We have lots to get done so Kylei needs to choose her date and we need to start making plans.
Week 14
Sunday, September 27, 2009
shot #14
This week was a bear for Bruce. He is getting a new computer at work so had to go to work Saturday morning at 8 for training. He looked white as a ghost but he headed out, all the while me telling him to bag it. When he dosent rest Saturday he feels crappy all weekend, which is what happened this weekend. He felt so bad Sunday afternoon he went down to bed. He is complaining he has no energy and is out of breath all the time. I wish he would listen to me and slow down. Hopefully he will feel better tomorrow. I wish there was something I could do to help him feel better but I cant seem to stumble on the answer.
Bella spent Friday night with us. She is really at that challenging age. You know she challenges everything, gaining her independence. Great except when she dosent listen and refuses to mind. We played a 30 minute stay in the naughty spot for time out today. At one point she wanted to make a game laughing all the way , didnt work I won and she spent her time in time out. My arms ache from carrying her back to her spot. I am going to have to read up on her zodiac sign see if I can get a better grip on her. Glowie got her 1st shots and didnt feel well Saturday night bless her heart. Monkey came to visit for dinner Sunday so I got to see them all this weekend.
shot #14
This week was a bear for Bruce. He is getting a new computer at work so had to go to work Saturday morning at 8 for training. He looked white as a ghost but he headed out, all the while me telling him to bag it. When he dosent rest Saturday he feels crappy all weekend, which is what happened this weekend. He felt so bad Sunday afternoon he went down to bed. He is complaining he has no energy and is out of breath all the time. I wish he would listen to me and slow down. Hopefully he will feel better tomorrow. I wish there was something I could do to help him feel better but I cant seem to stumble on the answer.
Bella spent Friday night with us. She is really at that challenging age. You know she challenges everything, gaining her independence. Great except when she dosent listen and refuses to mind. We played a 30 minute stay in the naughty spot for time out today. At one point she wanted to make a game laughing all the way , didnt work I won and she spent her time in time out. My arms ache from carrying her back to her spot. I am going to have to read up on her zodiac sign see if I can get a better grip on her. Glowie got her 1st shots and didnt feel well Saturday night bless her heart. Monkey came to visit for dinner Sunday so I got to see them all this weekend.
Week 13
Sunday, September 20, 2009
Week & shot #13
We headed to Sunriver Friday after work to spend the weekend with some old friends. It was great to get together and remanise. We have been friends since Travis was about 2 so we had lots to laugh about. Friday night Bruce took his shot when we headed to bed. Another restless night for him, there has to be some way for him to get some rest, I think we need to try Trazadone again. He was beat most of the weekend. I am getting worried about him loosing so much weight, he dosent eat like he should. He feels too skinny when I hug him. He says he has no energy which pisses him off. I think he needs to give himself a break but he wont listen to my nagging.I am not happy with the cough either. Maybe I will ask for a chest xray at his next appointment.It is hard to see him feeling so shitty and not anything I can do to help.
39 more weeks to go - we will make it but I will not kid you on how rough it is.
Week & shot #13
We headed to Sunriver Friday after work to spend the weekend with some old friends. It was great to get together and remanise. We have been friends since Travis was about 2 so we had lots to laugh about. Friday night Bruce took his shot when we headed to bed. Another restless night for him, there has to be some way for him to get some rest, I think we need to try Trazadone again. He was beat most of the weekend. I am getting worried about him loosing so much weight, he dosent eat like he should. He feels too skinny when I hug him. He says he has no energy which pisses him off. I think he needs to give himself a break but he wont listen to my nagging.I am not happy with the cough either. Maybe I will ask for a chest xray at his next appointment.It is hard to see him feeling so shitty and not anything I can do to help.
39 more weeks to go - we will make it but I will not kid you on how rough it is.
Week 12
Saturday, September 12, 2009
Shot #12
Bruce says -- cant we do a couple shots of Jack Daniels instead --- WOW I would love that but NO it wont work. He is such a trooper.
Bella spent the night she is sure lost since sister arrived, getting real aggresive. I really dont remember what I asked her to do, but she said NEVER, well you can imagine how that went over NOT. Told her excuse me but you will come sit here until you loose the tude.
That little girl thinks to sleep she has to practically strangle me in a neck lock(think wrestling). I think I slept maybe 4 hours. This morning was her 1st dance class. She put on her "tutu" and headed out, cute as can be. Her Mom has earned a free trip around the world for patience, Yaya maybe to the next town. I can not abide by rude kids, so Bella gets to spend her fair share of time in TIME- OUT. Honestly she is the same sweet girl we know but she needs to know her limits. What a handful and god bless I am so thankful for that, she is smart and crafty so she will have a great life once she learns the rules.
I gave Bruce a couple Trazadone to sleep, which thank god he did until about 5:30. Then Bella stuck her finger in his mouth to see how his teeth were LOL. He got up with her around 7:30, made her oatmeal with honey and butter, she did not eat much.At 8:00 I got up to make him a breakfast burrito. He ate it and took a 4 hour nap YES. We ran to Wally world but he was spent so we can home for a nap.My little blue eyed angel Monkey came down to see Yaya that girl loves graham crackers and water, no seperate, she eats graham crackers and drinks water like it is beer LOL
Maybe tonight we can go to dinner, but what I definately notice is Bruce shots dont seem as bad or as painful on Isla. Maybe we should go there for the next 40 weeks. Actually I think is it he is not busting butt on Isla, like his job here, and he is so worried about working here. I say "F" it stay home and relax, but he wont, says he feels needs to pull his weight. Honestly pulling his weight to me is being alive so we can live our life together, I can make the money. But he is a MAN.
My Dr. wants to take me off my drugs for Lupus as it is giving me many splotches on my skin, he also wants a Hep C test, which I said OK but I dont want the results. If my liver starts to have problems we will know then. He is concerned about my tiredness and aches. Whatever... I am good to go.
Shot #12
Bruce says -- cant we do a couple shots of Jack Daniels instead --- WOW I would love that but NO it wont work. He is such a trooper.
Bella spent the night she is sure lost since sister arrived, getting real aggresive. I really dont remember what I asked her to do, but she said NEVER, well you can imagine how that went over NOT. Told her excuse me but you will come sit here until you loose the tude.
That little girl thinks to sleep she has to practically strangle me in a neck lock(think wrestling). I think I slept maybe 4 hours. This morning was her 1st dance class. She put on her "tutu" and headed out, cute as can be. Her Mom has earned a free trip around the world for patience, Yaya maybe to the next town. I can not abide by rude kids, so Bella gets to spend her fair share of time in TIME- OUT. Honestly she is the same sweet girl we know but she needs to know her limits. What a handful and god bless I am so thankful for that, she is smart and crafty so she will have a great life once she learns the rules.
I gave Bruce a couple Trazadone to sleep, which thank god he did until about 5:30. Then Bella stuck her finger in his mouth to see how his teeth were LOL. He got up with her around 7:30, made her oatmeal with honey and butter, she did not eat much.At 8:00 I got up to make him a breakfast burrito. He ate it and took a 4 hour nap YES. We ran to Wally world but he was spent so we can home for a nap.My little blue eyed angel Monkey came down to see Yaya that girl loves graham crackers and water, no seperate, she eats graham crackers and drinks water like it is beer LOL
Maybe tonight we can go to dinner, but what I definately notice is Bruce shots dont seem as bad or as painful on Isla. Maybe we should go there for the next 40 weeks. Actually I think is it he is not busting butt on Isla, like his job here, and he is so worried about working here. I say "F" it stay home and relax, but he wont, says he feels needs to pull his weight. Honestly pulling his weight to me is being alive so we can live our life together, I can make the money. But he is a MAN.
My Dr. wants to take me off my drugs for Lupus as it is giving me many splotches on my skin, he also wants a Hep C test, which I said OK but I dont want the results. If my liver starts to have problems we will know then. He is concerned about my tiredness and aches. Whatever... I am good to go.
Week 5
Sunday, July 26, 2009
shot # 5
Bruce is doing much better with the side effects of his shot .. We have started him taking 2 extra strength Tylenol half hour before the shot and planning on him staying in bed late Saturday morning 10 to 11 am and he is doing much better.
This Saturday after he got up he went down and helped our son with a major project he is taking on. My son and his wife bought the house he was born in from us a few years ago and he is raising his family there just like we did. He is removing the pool we put in before he was born and he is 30 this year. They are pulling up the old redwood deck to repair replace and straighten the understructure of the deck relevel and give it a face lift . My how time flys -I am trying to figure out which one of us me or the deck needs more cosmetic work LOL -- now if I only weighted the 114 I did then, I think that damn deck lost some weight but not me HAHA .
It is hot hot hot here they are saying it was to be 108 today but I think more like 104 but that is hot enough. Our "girls" the 2 dogs are panting like there is no tomorrow. I think we need to dunk them in the pool but Bruce says it is too hot. Sometimes I dont get his logic.
We scored today. We took care of Glowie for a few hours so Bella could spend some time alone with her mom and dad out at the fair. We thought Bella would love to dump her sister and spend some special time without baby sister. She gave me a lecture about having to give Glowie back when they were done at fair which i promised i would, I told her i was only borrowing her for a few hours I guess she kind of cried and wanted to go back and get her sister after they drove off without her, how sweet.
Starting to get ready for our vacation to Isla end of August - I always pack all this crap down in my suit case and this time is no exception so I guess I need to get out the space bags and start smashing those towels and comforter and wall hangings down so they fit.
shot # 5
Bruce is doing much better with the side effects of his shot .. We have started him taking 2 extra strength Tylenol half hour before the shot and planning on him staying in bed late Saturday morning 10 to 11 am and he is doing much better.
This Saturday after he got up he went down and helped our son with a major project he is taking on. My son and his wife bought the house he was born in from us a few years ago and he is raising his family there just like we did. He is removing the pool we put in before he was born and he is 30 this year. They are pulling up the old redwood deck to repair replace and straighten the understructure of the deck relevel and give it a face lift . My how time flys -I am trying to figure out which one of us me or the deck needs more cosmetic work LOL -- now if I only weighted the 114 I did then, I think that damn deck lost some weight but not me HAHA .
It is hot hot hot here they are saying it was to be 108 today but I think more like 104 but that is hot enough. Our "girls" the 2 dogs are panting like there is no tomorrow. I think we need to dunk them in the pool but Bruce says it is too hot. Sometimes I dont get his logic.
We scored today. We took care of Glowie for a few hours so Bella could spend some time alone with her mom and dad out at the fair. We thought Bella would love to dump her sister and spend some special time without baby sister. She gave me a lecture about having to give Glowie back when they were done at fair which i promised i would, I told her i was only borrowing her for a few hours I guess she kind of cried and wanted to go back and get her sister after they drove off without her, how sweet.
Starting to get ready for our vacation to Isla end of August - I always pack all this crap down in my suit case and this time is no exception so I guess I need to get out the space bags and start smashing those towels and comforter and wall hangings down so they fit.
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